The Carolina Institute for Developmental Disabilities at UNC
The Carolina Institute includes:

Research Participant Registry Core

Bringing Together
Families & Researchers

Core Personnel & Contacts

Associate Director:
Kelly Real

Thank you for your interest in research at UNC.

Welcome Potential CIDD Research Participants

The purpose of this page is to provide an overview of the Research Registries offered at CIDD to parents of infants, typically developing preschoolers, and school-age children.

What Registries Does CIDD Operate?

The CIDD currently operates 4 Research Registries: The Intellectual and Developmental Disorders Registry, The NC Autism Registry, The Fragile X Registry, and The Child Development Registry.

Intellectual and Developmental Disorders Registry is a national registry of adults and children with specific syndromes such as Angelman, Down, Prader-Willi, Rett, Turner, Williams, and others. It also includes individuals with developmental delay, ADHD, communication delay and intellectual disabilities.

NC Autism Registry is a state-wide registry for children and adults with autism spectrum disorders.

Fragile X Registry is a national registry of children and adults with FXS.

Child Development Registry is a Triangle-area registry (NC counties: Wake, Chatham, Durham, Alamance, and Orange) of typically developing infants and children. Investigators can use this registry to recruit participants and age matched control subjects, and to pilot test assessment measures and protocols.

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